Myotonic Dystrophy Fund

Myotonic dystrophy (often shortened to “DM”) is a genetic disorder that affects many parts of the body. There are different types of DM, and some cause more serious problems than others. There is currently no cure for myotonic dystrophy but actively managing symptoms can help individuals achieve quality of life.  The worldwide average incidence is 1 in 8000 people. It is believed that at least three million people are impacted by Myotonic dystrophy globally, but it is believed to be under reported.