Epidermolysis Bullosa Fund

Epidermolysis bullosa (EB) is a group of rare genetic disorders characterized by extremely fragile skin that blisters and tears easily. There are four main types of EB: simplex, junctional, dystrophic, and Kindler syndrome, each varying in severity from mild to life-threatening. Common symptoms include painful blisters on the skin and mucous membranes, which can lead to scarring, fusion of fingers and toes, and complications affecting internal organs.