Cystinosis Fund

Cystinosis is a rare genetic condition that causes a buildup of a natural substance called cystine in the body. Over time, this buildup can damage the kidneys, eyes, muscles, and other parts of the body. It often starts in babies or young children and can lead to serious health problems if not treated. Medicines can help lower cystine levels and slow down damage, but treatment needs to be taken every day to work well.