Pompe - Privately Insured
OpenPrivately insured programs are designed for individuals with Group, COBRA, Individual, or Marketplace insurance, or are uninsured.
Am I likely eligible?
- Diagnosed with Pompe
- A U.S. resident receiving treatment in the U.S.
- Household income at or below 500% of the Federal Poverty Level Learn more about FPL (PDF, opens in a new tab)
- Uninsured
- Private Insurance
This is a guide, not a decision. Checking your eligibility takes a few questions and gives you an answer.
What assistance is available?
$8,500 total assistance available, shared across all types below
Uninsured
- Copay
- Medical Expenses
- Travel Expense
Private Insurance
- Copay
- Medical Expenses
- Premium
- Travel Expense
According to the U.S. National Library of Medicine, Pompe disease is an inherited disorder caused by the buildup of a complex sugar called glycogen in the body’s cells. The accumulation of glycogen in certain organs and tissues, especially muscles, impairs their ability to function normally. The classic form of infantile-onset Pompe disease begins within a few months of birth. The non-classic form of infantile-onset Pompe disease usually appears by age one and the late-onset type of Pompe disease may not become apparent until later in childhood, adolescence, or adulthood.
