MPS I
Mucopolysaccharidosis (MPS I) is a progressive, debilitating, and often life-threatening disease. It is a genetic disorder that can lead to organ damage and is caused by an alteration in the gene that make the enzyme called alpha-L-iduronidase. Symptoms may include stiffened joints, skeletal problems, heart disease, upper airway infections, hearing loss, etc.
Assistance Information
Dollar cap is shared across assistance types.
Other Insurance — Up to 500% FPL
| Assistance Type | Status | Max Amount |
|---|---|---|
| Copay | Open | $9,000 |
| Medical Expenses | Open | $9,000 |
| Travel Expense | Open | $500 |
Private Insurance — Up to 500% FPL
| Assistance Type | Status | Max Amount |
|---|---|---|
| Copay | Open | $9,000 |
| Medical Expenses | Open | $9,000 |
| Premium | Open | $9,000 |
| Travel Expense | Open | $500 |
Diagnosis Codes
- E76.0 Mucopolysaccharidosis, type I
- E76.01 Hurler's syndrome
- E76.02 Hurler-Scheie syndrome
- E76.03 Scheie's syndrome
Covered Medications
- Aldurazyme
- Laronidase
Resources
Caregiver Resources
ARCH National Respite Network and Resource Center
National Alliance for Caregiving
Other Patient Assistance Organizations
Mucopolysaccharidosis (MPS I) is a progressive, debilitating, and often life-threatening disease. It is a genetic disorder that can lead to organ damage and is caused by an alteration in the gene that make the enzyme called alpha-L-iduronidase. Symptoms may include stiffened joints, skeletal problems, heart disease, upper airway infections, hearing loss, etc.
Assistance Information
Dollar cap is shared across assistance types.
Public Insurance — Up to 500% FPL
| Assistance Type | Status | Max Amount |
|---|---|---|
| Copay | Open | $5,500 |
| Medical Expenses | Open | $5,500 |
| Premium | Open | $5,500 |
| Travel Expense | Open | $500 |
Diagnosis Codes
- E76.0 Mucopolysaccharidosis, type I
- E76.01 Hurler's syndrome
- E76.02 Hurler-Scheie syndrome
- E76.03 Scheie's syndrome
Covered Medications
- Aldurazyme
- Laronidase
Resources
Caregiver Resources
ARCH National Respite Network and Resource Center
National Alliance for Caregiving
Other Patient Assistance Organizations
