Back to all programs Open

MPS I

Up to $9,000 available in assistance for Private/Uninsured & Public

Check Eligibility & Apply for MPS I (opens in a new tab)

MPS I - Privately Insured

Open
Check Eligibility & Apply for MPS I - Privately Insured (opens in a new tab)

Privately insured programs are designed for individuals with Group, COBRA, Individual, or Marketplace insurance, or are uninsured.

Am I likely eligible?

This is a guide, not a decision. Checking your eligibility takes a few questions and gives you an answer.

What assistance is available?

$9,000 total assistance available, shared across all types below

Uninsured

  • Copay
  • Medical Expenses
  • Travel Expense up to $500

Private Insurance

  • Copay
  • Medical Expenses
  • Premium
  • Travel Expense up to $500

Resources

These organizations offer information and support for this condition. They are independent of Accessia Health, and may not currently have assistance available for this program.

National MPS Society

Caregiver Resources

Aging Life Care Association

ARCH National Respite Network and Resource Center

CaringBridge

National Alliance for Caregiving

NORD

Other Patient Assistance Organizations

The Assistance Fund

Patient Advocate Foundation

Good Days

Healthwell Foundation

PAN Foundation

MPS I - Publicly Insured

Open
Check Eligibility & Apply for MPS I - Publicly Insured (opens in a new tab)

Programs for those with public or federally sponsored insurance include all forms of Medicare, Medicaid, Tricare, or Veterans.

Am I likely eligible?

This is a guide, not a decision. Checking your eligibility takes a few questions and gives you an answer.

What assistance is available?

$5,500 total assistance available, shared across all types below

  • Copay
  • Medical Expenses
  • Premium
  • Travel Expense up to $500

Resources

These organizations offer information and support for this condition. They are independent of Accessia Health, and may not currently have assistance available for this program.

National MPS Society

Caregiver Resources

Aging Life Care Association

ARCH National Respite Network and Resource Center

CaringBridge

National Alliance for Caregiving

NORD

Other Patient Assistance Organizations

The Assistance Fund

Patient Advocate Foundation

Good Days

Healthwell Foundation

PAN Foundation

About MPS I

Mucopolysaccharidosis (MPS I) is a progressive, debilitating, and often life-threatening disease. It is a genetic disorder that can lead to organ damage and is caused by an alteration in the gene that make the enzyme called alpha-L-iduronidase. Symptoms may include stiffened joints, skeletal problems, heart disease, upper airway infections, hearing loss, etc.

Diagnosis codes

Your provider uses one of these codes when confirming your diagnosis. You do not need to know your code to apply.

  • E76.0 Mucopolysaccharidosis, type I
  • E76.01 Hurler's syndrome
  • E76.02 Hurler-Scheie syndrome
  • E76.03 Scheie's syndrome

Covered medications

2 medications are covered by this program. Assistance is not limited to medication costs.

  • Aldurazyme
  • Laronidase

Ready to find out if you qualify?

Checking your eligibility takes a few questions and gives you an answer. If this program is at capacity you can join the waitlist and we will contact you when it reopens.

Check Eligibility & Apply (opens in a new tab)