Hereditary Angioedema
Hereditary Angioedema (HAE) is a very rare and potentially life-threatening genetic condition. It is caused by a low level or improper function of a protein called C1 inhibitor. HAE occurs in about 1 in 10,000 to 1 in 50,000 people. Symptoms may include swelling in various parts of the body including hands, feet, face, intestinal tract, limbs, and airway (throat).
Assistance Information
Dollar cap is shared across assistance types.
Other Insurance — Up to 500% FPL
| Assistance Type | Status | Max Amount |
|---|---|---|
| Copay | Open | $9,500 |
| Medical Expenses | Open | $9,500 |
| Travel Expense | Open | $500 |
Private Insurance — Up to 500% FPL
| Assistance Type | Status | Max Amount |
|---|---|---|
| Copay | Open | $9,500 |
| Medical Expenses | Open | $9,500 |
| Premium | Open | $9,500 |
| Travel Expense | Open | $500 |
Diagnosis Codes
- D84.1 Defects in the complement system
- T78.4 Other and unspecified allergy
- T78.40 Allergy, unspecified
Covered Medications
- Danazol
- Berinert
- C1 Esterase Inhibitor (Human)
- Cinryze
- Haegarda
- C1 Esterase Inhibitor (Recomb)
- Ruconest
- Firazyr
- Icatibant Acetate
- Sajazir
- Berotralstat HCl
- Orladeyo
- Ecallantide
- Kalbitor
- Lanadelumab-flyo
- Takhzyro
- Andembry
- Garadacimab-gxii
- Ekterly
- Sebetralstat
- Dawnzera
- Donidalorsen Sodium
Resources
Hereditary Angioedema Association (HAEA)
Caregiver Resources
ARCH National Respite Network and Resource Center
National Alliance for Caregiving
Other Patient Assistance Organizations
Hereditary Angioedema (HAE) is a very rare and potentially life-threatening genetic condition. It is caused by a low level or improper function of a protein called C1 inhibitor. HAE occurs in about 1 in 10,000 to 1 in 50,000 people. Symptoms may include swelling in various parts of the body including hands, feet, face, intestinal tract, limbs, and airway (throat).
Assistance Information
Dollar cap is shared across assistance types.
Public Insurance — Up to 500% FPL
| Assistance Type | Status | Max Amount |
|---|---|---|
| Copay | Open | $7,500 |
| Medical Expenses | Open | $7,500 |
| Premium | Open | $7,500 |
| Travel Expense | Open | $500 |
Diagnosis Codes
- D84.1 Defects in the complement system
- T78.4 Other and unspecified allergy
- T78.40 Allergy, unspecified
Covered Medications
- Danazol
- Berinert
- C1 Esterase Inhibitor (Human)
- Cinryze
- Haegarda
- C1 Esterase Inhibitor (Recomb)
- Ruconest
- Firazyr
- Icatibant Acetate
- Sajazir
- Berotralstat HCl
- Orladeyo
- Ecallantide
- Kalbitor
- Lanadelumab-flyo
- Takhzyro
- Andembry
- Garadacimab-gxii
- Ekterly
- Sebetralstat
- Dawnzera
- Donidalorsen Sodium
Resources
Hereditary Angioedema Association (HAEA)
Caregiver Resources
ARCH National Respite Network and Resource Center
National Alliance for Caregiving
Other Patient Assistance Organizations
